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The Honolulu Advertiser
Posted on: Monday, April 10, 2006

Patients find recovery loves company

By Catherine E. Toth
Advertiser Staff Writer

Peter Jhun, founder of the Kalakaua 'Ohana Club for stroke victims and their families, lends support as George Nakamoto exercises at Kalakaua Gym. Jhun began the club in 1985 after he found that exercise and fellowship helped him recover from his own stroke.

BRUCE ASATO | The Honolulu Advertiser

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KALAKAUA 'OHANA CLUB

• 9 a.m. to noon

• Mondays, Wednesdays, Fridays

• Kalakaua Gym at Kalakaua District Park

• $12 annual membership fee

Call the gym to register at 832-7801. The club will be limited to 150 people and a wait list will be available.

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ABOUT STROKE

Stroke is a type of cardiovascular disease that affects the arteries leading to and within the brain. It occurs when a blood vessel that carries oxygen and nutrients to the brain is either blocked by a clot or bursts. Within a few minutes to a few hours, brain cells begin to die.

Stroke is a medical emergency. Prompt treatment could mean the difference between life and death.

"I think the public doesn't have good awareness of the causes of stroke, the warning signs and the advances in treatment," said Dr. Sharon Vitousek, who's part of the North Hawai'i Outcomes Project, which is currently focusing on reducing the high stroke rate on the Big Island. "It's extremely common that people have these warning signs that go away, then they get a full-blown stroke later."

Early treatment can minimize damage to the brain and potential disability.

Here's what you should know.

WARNING SIGNS

Sudden numbness, weakness, or paralysis of the face, arm or leg — usually on one side of the body

Loss of speech, or trouble talking or understanding speech (aphasia)

Sudden blurred, double or decreased vision

Dizziness, loss of balance or loss of coordination

A sudden, severe "bolt out of the blue" headache or an unusual headache, which may be accompanied by a stiff neck, facial pain, pain between the eyes, vomiting or altered consciousness

Confusion, or problems with memory, spatial orientation or perception

STROKE PREVENTION

There are some risk factors you can't control — aging, family history, race and gender — but you can change or treat most other factors to lower your risk.

Here are some ways to help prevent stroke:

Eat a healthy diet low in saturated fat and rich in fruits, vegetables and whole grains. Keep your weight under control.

Get regular exercise, at least 30 minutes a day.

Manage stress in your life.

Keep your blood pressure in check. If you have high blood pressure, take your medications as prescribed by your doctor.

Lower your cholesterol level.

Quit smoking.

Aspirin therapy may be useful, but check with your doctor first.

Sources: American Stroke Association, National Women's Health Information Center, Mayo Clinic

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Sidney Uyeda helps his wife, Adeline, traverse the Kalakaua Gym floor. People who belong to the gym's stroke support club say they are helped as much by the camaraderie as the exercise.

BRUCE ASATO | The Honolulu Advertiser

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Peter Jhun, left, founder of the Kalakaua 'Ohana Club for stroke victims and their families, helps Ruth Chang exercise her arm, while Maxine Horton uses a stationary bike modified so she can sit in a regular chair as she pedals. The club has about 180 members.

BRUCE ASATO | The Honolulu Advertiser

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Five years ago, Carl Neff was on his way to becoming a pilot, a career goal he set while a teenager at Punahou School. In the meantime, he fixed boats, raced his 20-foot Nacra catamaran and windsurfed. Until he suffered a stroke — at age 39.

"I had a little vision problem, but I didn't know why," said Neff, 44, of Kailua. "The next thing I knew, I was in the hospital."

Neff couldn't walk or move his right arm. His speech was slurred and his vision remained double. He spent six months in rehab before finding out about the Kalakaua 'Ohana Club, a program at the Kalakaua Gym in Kalihi for stroke victims that focuses on physical therapy.

The club was started in 1985 by longtime boxing coach Peter Jhun, who suffered a stroke 26 years ago. He found that exercise — and getting out of the house — helped him improve both physically and mentally.

"When I exercised, I got well," said Jhun, 80, massaging the limp hand of Maxine Horton, who had a stroke 12 years ago. "People come out here to exercise and talk to people. I found that's therapy in itself."

There are handfuls of support groups for stroke survivors in Hawai'i, but there is nothing quite like the Kalakaua 'Ohana Club, which has about 180 members. The program — really more like a community — is unique for its unstructured, casual format that combines fellowship with fitness and serves stroke victims and their families together, all for a low cost.

Three times a week, for four hours in the morning, the gym is open to stroke survivors and their families. One half of the gym is full of mismatched gym equipment donated or bought at thrift stores. There are recumbent bikes, treadmills and weight machines.

The other half is open to people who want to work on their walking, using canes or walkers or nothing at all.

Members pay $12 a year to be part of the club. The money is spent on the coffee and tea that are served every morning — most members bring food to share — and monthly birthday parties.

Many of the stroke survivors come as much for the social interaction as the workout.

Horton, 83, of Hawai'i Kai, has been coming to Kalakaua Gym since she had a stroke 12 years ago that left her partially paralyzed on her left side.

She prefers using the recumbent bike and chatting with other members to sitting at home watching TV.

"I have to come for exercise because if I don't, my leg gets stiff," Horton said. "I feel better when I come here."

June Alves, 74 of Aliamanu, used to bring her husband to the gym to supplement his physical therapy after he suffered a stroke. He died three years ago. But it was the camaraderie he felt here that helped him improve, she said, and it's the reason she comes back to volunteer.

"Honestly, this was the best thing for him," said Alves, who teaches a breathing and stretching class. "Everybody is in the same situation. They react to the fact that there are other people with disabilities similar to theirs, and that makes them feel comfortable."

Rehabilitation is an important component of stroke recovery, and it often includes physical, speech and occupational therapy. The goal is to help stroke survivors return to independent living.

While therapy can't reverse the effects of a stroke, it can build strength and capability, which boost self-confidence.

"A lot of their self-confidence is gone, their independence is gone, their self-worth has decreased," said Catherine Church, a therapeutic recreation specialist and stroke club coordinator at Rehabilitation Hospital of the Pacific. "We want to help them improve their independence."

Jhun admitted he had the "sorry-for-yourself" syndrome after his stroke. Though he was physically fit, he had high blood pressure and didn't take his medications properly, which may have led to the stroke.

"I was a terrible guy to live with," Jhun said, laughing. "I kept asking, 'Why me?' "

Neff felt that way, too, having to give up his hobbies and dream of becoming a pilot.

But now he's got other hobbies — riding a three-wheel bike and trading stocks online — that keep him busy and optimistic.

Though he sold his two planes, he still owns the catamaran, which he takes out — with friends, of course — about six times a year.

"This has been good," Neff said about the club. "I'm able to talk a lot better than before and it gets me out of the house."

His new goal: "Not to get another stroke," he said, smiling. "No more."

Reach Catherine E. Toth at ctoth@honoluluadvertiser.com.

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STROKE CLUBS

More support groups for stroke survivors and their families:

REHAB Hospital of the Pacific: 531-3511, www.rehabhospital.org

Eldercare Hawai'i: 538-7021, www.eldercarehawaii.com

American Heart Association: Big Island Stroke Club (Hilo), (808) 961-2825

Windward Stroke Club: Castle Medical Center, 263-5400


MORE INFORMATION

American Stroke Association: www.strokeassociation.org

National Stroke Association: www.stroke.org

National Institute of Neurological Disorders and Stroke: www.ninds.nih.gov

National Heart, Lung and Blood Institute: www.nhlbi.nih.gov

American Heart Association: www.americanheart.org

National Women's Health Information Center: www.womenshealth.gov



Correction: The Kalakaua 'Ohana Club meets from 9 a.m. to noon Mondays, Wednesdays and Fridays at the gym at Kalakaua District Park. The city would prefer those interested to call the gym to register at 832-7801. The club will be limited to 150 people and a wait list will be available. This information was not included in a previous version of this story.